7 daily habits, that will change your life;
1 – wake up
2 – complain less
3 – teach others
4 – roll with change
5 – be on time
6 – practice kindness
7 – stay positive
Tag: this is me
Part 2 – The Healing Journey With FND……..
Back on June 26, I told of my introduction to the invisible illness, known as ‘Functional Neurological Disorder’ with “Once Upon A Time….Living With Invisible Illness”.
Once Upon A Timeโฆ..Living With A Body Filled With Invisible Illness. โ A Barefoot Goddess On A Journey
https://abarefootgoddessonajourney.wordpress.com/2017/06/26/once-upon-a-time-living-with-a-body-filled-with-invisible-illness/
They were dark times…….many days filled with limb spasms, seizures, falls, lots of falls caused by chronic balance issues. Living with symptoms such as these, left me mentally, physically and emotionally drained and it seemed like no one understood. But, it really broke me when the paralysis down my right side occurred……I had to rely totally on those closest to me. Using cutlery was out, I had forgotten how to do my shoelaces up, my walking gait was non existent if I wanted to stay upright, but what made it worst, was that I could no longer crochet. Crochet was my thing….as it was something I could do…..when I couldn’t do anything at all, so not even being able to do that was like a nuclear bomb had gone off.
How was I going to get better…..how could I heal from this, those were my thoughts, constantly.
As, I had mentioned in my previous blog…..I was discharged from hospital with numerous referrals. A couple of weeks went on, when finally I began to receive home based NeuroPhysio to begin the process of helping me learn the art of ‘functional movement’. My home based physio, was wonderful. She pushed me but only as much as I needed. Over what would be four weeks, she enabled me to be able to sit and stand from my sofa, there was still wobbles and shakes but my brain was picking up signals from the body and I was making positive progress. Walking was very difficult and prior to therapy I only had been given a walking stick, which was pretty much useless. My home based physio was able to help me get a walker. Initially I wasn’t completely in agreeable to this mobility aid….but I soon found that it was a godsend. I could use it to help me progress my sit to stand. Using it to help teach me to formulate a walking gait was brilliant. Over, I think it was six weeks, she had really assisted my confidence towards mobility. Home based was then changed to centre based NeuroPhysio. I was lucky to be able to given another therapist that knew what FND was. From day one, we formed a bond. At the Williamstown Hospital where I was having physical therapy, I also began OT (occupational therapy) and thanks to my physio, I had an excellent OT plan created, allowing me to slowly build strength in my paralysed right hand. It was slow going. Some sessions, would see me move my hand, perhaps 5 cm along the table. But that activity caused such fatigue that I would sleep for a day and a half. NeuroPhysio was able to help me again help reconnect my internal software into knowing that to step I had to lift the leg up and down……up and down, again these sessions were also slow. It’s all progress, though and I learnt that even a little is the beginning of reconnecting my brains wiring to my body’s wiring.
In addition to the physical therapy, I began seeing a neuropsychologist. Again, I was sceptical how this could assist but as time went on, I began to learn that it was a spiralling of many things across my entire life that had caused my software malfunction. I had to work through the abuse that I had endured as a child and teenager as well as the many years living with the chronic combination of illnesses. I began to find that as my mind was being able to be cleansed of all the dark clutter that I had chosen to lock inside me, my body also was able to be cleansed. This psych work was working alongside the physical therapy.
I continue to use the physical therapies with the therapy to help the mental trauma, so that I can perhaps live the life that I most love. You see due to extreme fatigue and still requiring the walking frame for mobility when out n about I can’t work a ‘normal’ 40 hour job. I spend everyday working on healing, with the therapies that I’ve spoken about as well as using an adaptive yoga and meditation. I am also a vegan and I truly believe all my healing modalities are helping me to progress to those dreams and goals of living the life that I love.
Although I cannot work a normal job, I now act as a advocate and speaker for invisible illnesses. Each day, I get stronger I seek to add more objectives and goals for raising awareness, support and research for illnesses, such as FND. If you’ve been following me, you would have noticed that I am creating a ongoing campaign known as #lightingtheflame for #invisibleillness that works on shining a light on all unseen health conditions. My other campaign is #standingup4FND and that is fully focused on functional neurological disorder and will be linked to my future documentary and book.
Functional Neurological Disorder is an ongoing battle to overcome, as the symptoms flow in and out without any notice. Some symptoms can be lived with, others leave me severely impaired. This disorder, is a illness that very few know about and that includes the specialist medical fraternity. For I and many others across my country of Australia and many other countries worldwide to progress with our healing we need much needed awareness, support and so much more research.
If my story has helped you to understand the FND, please like and share this blog, or alternatively connect with me on social media at;
http://www.facebook.com/TheBarefootGoddessAU
http://www.twitter.com/just_1_goddess
http://www.instagram.com/the__barefoot__goddess
I want us all to be able to walk together, so let’s bring a wave of kindness to stamp out the stigma that exists currently with regard to all invisible illness.
Much love
TBG ๐
Declaring mental, physical & financial bankruptcy….
Anyone who knows me well, will agree that I like to do everything myself. Due to STIGMA, I even hid the severity of my illnesses for a long time and in part lead me to nearly succeeding in suicide last year.
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Deciding to be fully transparent and honest in declaring my mental, physical and financial bankruptcy is somewhat freeing and has allowed me to step into healing and living and loving a life that I want and need too.live Opening up, has also helped me realise my life mission and purpose and that is to better educate the world about chronic and mental health illnesses . I believe talking outwardly it has improved my health conditions and I want to help millions of others around the world to improve theirs too.
I want to tell you, that being a woman that has succumbed to chronic physical and mental health issues, it has been a struggle with a sense of guilt because of my many conditions, both physical and mental symptoms at times, make me feel like I was a burden or that I was causing trouble for my loved ones . This sense of guilt creates an anxiety that withers strengh away when unchecked. Sinking, deeper and darker forces you out of life because that physical and mental pain is unbearable – you are then unable to make a living, so as well as health being bankrupt, so are your finances. This is when life becomes non existence because you are so horribly ill, that you cannot work but because you are hiding the severity , your loved ones and the greater environment cant see the true extent of your problems.
I felt a failure for so long but since becoming fully transparent , I now know none of my health illnesses or my financial woes are to be blamed….what has occurred , has occurred. It is now about recovery in aspects of life so that I can keep moving forward on my life journey. By reducing the feeling of guilt within myself , my anxiety that comes from it, has lessened too. I am no longer shy to speak about my down times, because I am becoming aware of just how many people just like me there are around the globe in similar circumstances and they too are fearful of putting their hands up for help because of the STIGMA that shades invisible illnesses.
Standing up was really hard to do, and it was only for the fact that I failed at suicide that I am now where I am, but Iโve found that for myself, changing the way I think, breathe and live can make lifes wandering so much easier.
I now, try not to put myself in situations where I might have the temptation to hide even if itโs with the intention to avoiding hurting someoneโs feelings. I find it helpful to breathe and speak an honest life because not only can I avoid the negative physical and mental effects, but I can be help others see that it’s ok to do the same. Sometimes now , as I speak it may be hurtful but it’s not about anyone in particular, it’s to explain how thoughts and feelings can cause negative connotations to mental and physical health and as spoken about when left unchecked it can badly affect all areas of life.
It’s not to say that I don’t hide myself anymore, because I do. But when you make it your goal to show your journey in total and that’s the good, bad and indifferent it’s very freeing for yourself and then others living similar chronic illness journeys begin to follow on. This is the beginning of raising awareness and just perhaps the beginning to ease the state of stigma. By telling the true chronically invisible health story I am showing that there is no need to feel guilty and finally the larger community and globe can learn and treat these health and life issues better.
If you need help, please don’t feel weak or not good enough to receive it! When, we step ourselves out into the world and let them hear our stories, we let the sun, shine through and so the stress, the hardship becomes bearable and thus healing really begins.
If you resonate with my story please like and share my post and let me know.
Lots of love
The Barefoot Goddess ๐
Please also connect with me on social media at;
http://www.facebook.com/IAFNDAware
http://www.twitter.com/FND_Goddess
http://www.instagram.com/the__barefoot__goddess
“Wandering Towards Wellness, Globally “
Life Isn’t Fair Sometimes….But It’s About Blowing Sunshine & Sparkles โจ๐ฉโจ
Life isn’t fair sometimes, but hey I have found rainbows through the shit and I am ready to blow more sunshine across the globe despite the challenges that somehow find there way to me and through me. Let me explain;
This seems to be way to wander life’s journey. A huge storm cloud breaks over me. The thunder, lightning and rain completely overwhelms every facet of my being, I cry and scream. Then as if nothing has happened- there is a calmness through the darkness I let myself breathe and as I do the sunshine comes through the darkest clouds. As I am breathing, magic sparkles and allows energetic vibrational levels of healing energy to fill every level of my body again.
You see, I am the sunshine BUT I am also the crazy ravenous dark storm clouds. Somehow, though they mix well together to raise light, love, kindness and compassion for all of us that wander a life with chronic and invisible illnesses.
If this resonates with you somehow make sure you like and share it across the world because this will allow us all to walk together.
Also don’t forget to connect with me on my social media channels;
http://www.facebook.com/IAmFNDAware
http://www.twitter.com/FND_Goddess
http://www.instagram.com/fnd_goddess
Much love
Lisa-Raie ๐
“Wandering Towards Wellness, Globally”
When Growing Pains Become Journalling Sessions Which Then Turn To Blog Posts……๐ฃ
Wow, these words talk to me, they lift me up to that mountain so high! When you awaken from darkness, what happens is that you grow and expand to a higher realm of energy that you’ve never been consciously!
I think that’s why I’ve been able to make the steps that I have I’ve the last 24 hours. Those steps they shook me to the core, for an instant I thought that it was me moving backwards but after sitting inward I now know it’s growth with upleveling. I am so proud of myself for making it this far and I know I can make it to my destination in health and life.
Be BRAVE , self this is your time. Keep walking, keep talking for the world needs to hear what you have to say.
Much love
Lisa-Raie ๐
Let’s connect on social media;
http://www.facebook.com/IAmFNDAware
http://www.twitter.com/FND_Goddess
http://www.instagram.com/fnd_goddess
” Wandering Towards Wellness, Globally”