Seven Daily Habits

7 daily habits, that will change your life;
1 – wake up 
2 – complain less
3 – teach others
4 – roll with change
5 – be on time
6 – practice kindness
7 – stay positive

Life according to me, in thought and action……

Living life according to me in thoughts and actions looks and feels something like this;

  • I try to keep everything simple, but when I want to achieve something, I do it with all my heart! That sometimes, goes awry.
  • I am a over-thinker. Letting the truth, be told I have 100s of imaginary scenario playing in my head  at any one time….sometimes this makes situations more difficult than it should be but well this is how I am and it’s how I make the magic happen.
  • Health and life issues will always challenge me, as I aren’t someone who keep things to themselves anymore. I used to hold it all inside until I became toxic to anyone or anything, now I will confront the challenges head on, till I am facing back in the right direction. I am real and raw and that’s not always easy, but it’s the difficult times that push me back through to better days. Although I know life can’t be perfect, it’s the want of perfection that makes think a lot which at times causes the challenges that mess up particular situations.
  • I am one of the best listeners. I can listen to others stories all day, everyday and I  will listen to every story with keen interest even if it’s about something I don’t understand. I know the importance of listening and I want others to reciprocate that.

So this is me and this is how I wander the shores of the globe preaching and teaching about my experiences and beliefs. It may not be normal, but what is normal anyway!

Much love

Harmoni 💋

http://www.twitter.com/just_1_goddess

http://www.instagram.com/the__barefoot__goddess

So You Have A Diagnosis of FND……WHAT’S NEXT ?

So you’ve got a diagnosis of Functional Neurological Disorder! GREAT – but how quickly, that elation diminishes- well it did for me! I soon had many more questions than when my array of symptoms was initially being worked out.

So there I was, I had a diagnosis, that even my initial neurologist didn’t know much about. She sent me home with the name of a website, medications and lots of referrals. I was paralysed down my right side, unable to use my right hand, loss of balance finding it dreadfully hard to walk even small areas without falling, that was just the tip of the iceberg of what was happening to me! I was totally needing the assistance of my husband…..BUT, I had to wait weeks for my referrals to let the only known treatments begin…..and those weeks seemed to last a lifetime! The treatments did finally begin and yes, I have progressed well but I am still left with bouts of debilitating symptoms that would floor even the strongest of people.

Sorry to ramble, but this is a similar journey for so many people also affected with FND. It’s very frustrating, scary and lonely but finding a GP and neurologist that you can trust, so that you can keep an ongoing relationship with over time is so very important.

This is why, I’ve decided to go public….very public on my healing journey with FND. Everyday, I am involved in my treatments that include NeuroPhysio, OT, speech and psychological therapies. If that’s not enough to concentrate on, I am also beginning to create and launch what will be a globally known research foundation with a connected healing centre. I want to bring thorough research for more reliable ways, firstly for making the FND diagnosis. But I want to then, have a better platform for educating neurologists and general practitioners around the world about how to educate and connect appropriate treatments to suit individual patients. With a better platform for medical doctors, I feel that a much better awareness and support system will be able to be put into play for patients and their carers. There are a number of patient support groups popping up across social media now and I believe these are wonderful links to help people connect with others that are living with similar but different issues with the same disorder. 

However, for me to be able to do this I need a bigger support network. Across, the globe there have been sports stars and celebrities, who have succumbed to debilitating diseases. They have helped awareness and research foundations for their particular medical conditions, set up amazing platforms. I don’t have that profile….but I do have the determination because I am a survivor of this condition and with your help out there, I know we can build people power in bringing what so many that battle FND need for healing health and life.

If you haven’t connected on social media, please do so and let’s beat this beast of a disorder;

http://www.twitter.com/just_1_goddess

http://www.instagram.com/the__barefoot__goddess

Walking & Talking for ME and YOU,

Harmoni 💋

Just How Do I Define Invisible Illness…….I Do It By #lightingtheflame 🔥

So how do I define invisible illness; I could say it’s an illness or disability that is hidden or not apparent, but that doesn’t even begin to define what some of these illnesses really are, or how they impact the many millions that live with them everyday. You see, some people with sight or hearing disabilities may not wear glasses or hearing aids, BUT they are invisibly disabled.  Someone that may have to sit day in, day out because they have chronic back or joint problems sitting, can be categorised as having a invisible impairment. Invisible disability/ illness creates so many challenges for the people that live with them. There are so many more examples that I could give to define a invisible disability. The reality of invisible illness or disability, is that they can be so difficult for others to recognise or acknowledge. This makes it  difficult to understand the cause of the problem or problems, because they can’t see evidence of it in a visible way. So these invisible conditions have been captured under an umbrella term that captures the whole spectrum of hidden disabilities, known as ‘invisible illnesses’. Having so many illnesses and conditions under the one umbrella, means it is so hard to decipher and diagnose what is actually happening to a person that presents with unseen symptoms.


People with invisible illnesses can find it difficult to  make others understand how their  symptoms of such things as extreme fatigue, dizziness, pain, can be so debilitating.  This misunderstanding, will in many cases be met with hostility, judgement and stigma by the bigger community and world.

People living with invisible illnesses and chronic pain are often accused of faking or imagining their disabilities. These symptoms are real, they can occur due to bouts of chronic illness, chronic pain, injury, birth disorders, they can even just come out of the blue and most importantly are not always obvious to the onlooker.

 Many millions of people around the world, have a medical condition which could be considered a type of invisible illness or disability. Let me explain it this way, there are many that have a chronic medical condition of one kind or another, some of these people are not considered to be disabled, as their medical conditions do not impair their normal everyday activities. These people do not use an assistive device and most look and act healthy. So I’ve explained one side of illness invisibility, this is the other side, the side that causes and increases what can be debilitating physical or mental impairment that can lessen one or more major life activity.  

It saddens me that when somebody sees a person in a wheelchair, wearing a hearing aid, or carrying a white cane, it tells us a person is impaired in some way. But for people living with invisible illness and/or disability living is a bit more difficult for many people in the world to acknowledge. 

Invisible illness and disability can and do significantly impair normal activities of daily living.
Examples of Invisible illness Disability vary, here are just a few;

  • Chronic Pain can be the cause from a variety of conditions. A few reasons for chronic pain may be because of back problems, bone disease, physical injuries, and many more reasons. Chronic pain may not be clear to people who do not understand the specific medical condition.
  • Chronic Fatigue is a type of disability that refers to an individual who constantly feels tired. This can be extremely debilitating and affect every aspect of a persons every day life. It is totally invisible to the greater community.
  • Mental Illness is a term for many illnesses of the mind. Examples are depression, attention deficit disorder, schizophrenia, agoraphobia, bipolar and the list goes on. These illnesses can also be completely debilitating to the person suffering and can make performing everyday tasks extremely difficult, if not impossible.
  • Chronic Dizziness is often associated with problems of the inner ear, chronic dizziness can lead to impairment when walking, driving, working, sleeping, and other common tasks.

I hope you are beginning to see that being invisibly ill, effects many areas of health which effects many areas of life. Many people living with a hidden physical or mental challenge are still able to be active in their hobbies, work and even be active in sports, but their are others that struggle just to get through their day and cannot work at all. 

I want us all to be able to come together in understanding the true level of invisible illness and disability. Because, when we do we will truly begin to see awareness and support bringing better research and thus treatments. 

I will finish today with a list of invisible illnesses that I’ve been creating to show the world just how wide the umbrella is…….but even I may have forgotten some. If I have, please let me know and I will add your illness/disability to the list;

INVISIBLE ILLNESSES 

ADHD

Anxiety disorders

Allergies

Arachnoiditis

Asperger Syndrome

Asthma

Autism

Bipolar disorder

Brain injuries

Chronic fatigue syndrome

Chronic pain

Chromosome Duplication

Chromosome Triplication

Coeliac Disease

Conversion Disorder 

Crohn’s disease

Depression

Diabetes

Ehlers Danlos Syndrome

Endometreosis

Epilepsy

Fibromyalgia

Food allergies

Fructose malabsorption

Functional Neurological Disorder 

Hypoglycemia

Inflammatory bowel disease

Interstitial cystitis

Irritable Bowel Syndrome

Lactose Intolerance

Lupus

Lyme Disease

Major depression

Metabolic syndrome

Migraines

Multiple Sclerosis

Multiple Chemical Sensitivity

Myasthenia Gravis

Narcolepsy

Personality disorders

Primary immunodeficiency

Psychiatric disabilities

Reflex Sympathetic Dystrophy

Repetitive stress injuries

Rheumatoid arthritis

Sarcoidosis 

Schnitzler’s Syndrome

Schizophrenia

Scleroderma

Seizures 

Sjogren’s syndrome

Transverse Myelitis

Ulcerative Colitis

Invisible illness and/or disability creates challenges for the people who have them. I’ve said it before and I will say it again and again, the reality of these conditions can be difficult for others to recognise or acknowledge. You may not even understand the cause of the problems, because you cannot see evidence of it in a visible way. So, I say to you – YES, YOU out there in the big wide world, if you can’t see something, how can you judge it! Let’s begin walking together supporting those that are impacted by the many forms of invisible illness. Let’s raise awareness and bring about more real life research so better information and treatments can be formulated to change the way we all see and relate to invisible illness and disability.

If you’ve liked this post, please let me know and if we haven’t connected on social media, let’s do so here;

http://www.facebook.com/TheBarefootGoddessAU

http://www.twitter.com/just_1_goddess

http://www.instagram.com/the__barefoot__goddess

Much love to you all
TBG 💋

So Dark & So Deep Are The Secrets That You Keep….

So how much do I want life?  How much do I love life?  How deep and dark are the secrets that I keep?These are the questions I’ve been pondering!?!

What appears to be such a long time ago but it really isn’t that long ago…..I saw pain, I felt pain in the realism of wanting the very best , to be the very best for me and my only true beloved and wanted life and career!
It began at the age of three and YES from about 11 to the age of 17, all I breathed, all I wanted was to be a professional ballerina! I practiced, I breathed , I bled , cried and screamed!

When the blessed journey came crashing down , I guess that was when life began to fall down as well. That evil monster who deemed dance was not a life journey – that monster, hid me, destroyed me and punished me for years !
Life in all its entirety never really had the same oomph – There was no stage, there was no reason! 


Over the future forward years,  because my truest self had died, life died and became filled with unwanted pursuits and illness! 

2016, found me destitute and in suicides hive – it was then I realised that life could still be lived, life could still be loved! The dream for everything wanted, is never over! Age, illness, life’s journey it is all dependent on us not the circumstance or numbers! Believe in your stance and most inner breath! Be the goddess, be the strength that is within!


I have been awakened and I have been aligned to my truest self – that self in tutus , pink tights, practice leotards & ballet shoes . That self is a member of the 1% in the 1% and I have success within my veins for obtaining top level love and life because I know what it takes to get there!

So today, let me take you on a journey to find you , not what everyone wants to see, BUT that you that you are! It begins with that little person of long ago – yes she is still there – AWAKEN HER NOW!

Step up onto the stage of life, with the much loved pointe shoes on and feel all of those broken toes, bruises and abrasions . Feel the pain, feel the joy and dance on because it’s what makes you live! If you have narcissists telling you , that is not the life journey- cast them aside because honey, this life is you, of course it’s your life journey! 
I stood in the darkness for way too long – but no one is ever too old to be what ever they are truly meant to be! Get out and shine…..

This is me, I am alive, I am able to shine because I have the pain bringing me back to the joy of life…..and before I step out on my stage, I never forget to breathe and know that this is where I am meant to be and it’s why I can’t help but smile.

Resonate with me, don’t forget to like and share.

Also connect with me on my social media channels;

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess

“Wandering Towards Wellness, Globally”

Chronic Pain & Illness Deserve Respect and Research Too…….

CHRONIC PAIN & ILLNESS DESERVE THE SAME AMOUNT OF RESPECT and RESEARCH AS CANCERS……please read & share doing so you support your friends wandering a lonely path towards finding wellness……..

I WANT THESE WORDS, SHARED ACROSS OUR GLOBE, SO THAT CONVERSATIONS CAN BE BEGUN TO HELP AND SUPPORT CHRONIC PAIN & ILLNESS PATIENTS . It starts with one and if just one other person then shares this, then another, then another-before long we will have a global conversation and greater awareness of the importance for better healthcare for chronic and invisible illness.
THIS IS MY FIRST AWARENESS CHALLENGE-PLEASE HELP ME SHARE MY MESSAGE GLOBALLY……and this is why;

More work needs to be done for chronic pain and illness. The numbers of people globally feeling that they have no way out of their chronic pain and illness is growing at scary rates. 
Our Governments need to wake up and give this the same attention it gives to cancer. One day of the year, for “RUOK” day, that spotlights mental illness and depression doesn’t cut it and the effects that these invisible illnesses have on the individuals, families and friends is devastating.

I can say this, because I breathe, walk and talk the journey everyday. It’s my mission to open up more discussion and conversation for myself and many others. WHY, because we all deserve a life that we love. 

I WANT THESE WORDS, SHARED ACROSS OUR GLOBE, SO THAT CONVERSATIONS CAN BE BEGUN TO HELP AND SUPPORT CHRONIC PAIN & ILLNESS PATIENTS .
Let’s send this viral and start walking, talking and wandering towards a life of wellness.

We Don’t Have A Opioid Epidemic – We Have A Chronic Pain & Illness Epidemic – HELP US don’t HURT US!

I’ve been rewriting this blog over and over again, and to be blunt there is no other way to write it,  but to get straight to the point – so here I go.

Living with intense and constant chronic pain and illnesses are challenging, to say the least but it’s a way of life every day for myself and millions of people all around the world. Being ill in this way is living with the unknown. Every day is different, and it’s really hard to plan when you have no idea how you will feel when you wake up or actually not knowing whether you will feel ok to live the life that you dream about and love and so it is so very hard not to feel anxious, depressed or even completely lost living with one huge question mark hanging over your life’s existence.There are a million and more constant questions and often no answers. 

So to be clear nobody really knows how to deal with chronic pain and illness, and that includes us as the people who have them, the loved ones that surround us and even the doctors trying to treat us. There is no guidebook for chronically lifelong illnesses and no way to answer all the questions that I have previously mentioned before, because every journey is so personal and there are so many illnesses categorised and labeled this way. So you see, when you have these types of illnesses your body is literally fighting against itself. The physical side of it is all throughout your body – you are living in daily pain, fatigue, with aches, food intolerances, medications along with hospital trips, surgeries, treatments, etc. It is, at times, too much to bear leaving us physically, mentally and emotionally devastated. 

So medication is being trialled all the time and this is where the journey of living with chronic pain and illness becomes scary as much of this medication is pain relief based consisting of opioid ingredients.

More and more there are scary headlines crossing all forms of media globally with such things as; “THE WORLD IS ADDICTED TO OPIOIDS” or perhaps  “THE OPIOID EPIDEMIC IS HERE”. The media is obsessed with the idea of the “opioid epidemic” taking over the world and affecting millions of people and ruining life as we know it. We regularly see on TV telling viewers about how pain killers are the worst things ever invented, and only people with cancer should be allowed to have them. So where does this leave the invisible chronically ill and in pain patients?? Because of these scare tactics, even some doctors can be found ducking and weaving, telling their patients that they now have to get over their pain alone. Some doctors are still sympathetic, but they are also being harassed by their own medical boards so they really have no choice to lessen use of prescription pain killers. This is all because the media says there is an opioid epidemic. The world talks about a supposed epidemic however there are millions of  people living with chronic pain and illness globally.

In my opinion, yes there are too many painkillers being prescribed but has anyone stopped to ask why this is? I believe its because millions of people are in constant and chronic pain with more modern day illnesses caused by the stress and pressure on life in general and also that the medical alternatives which are great treatments to pain killers like for example, massage,physical therapy, chiropractic care, acupuncture and the list goes on, are way to expensive and pricey and financially out of reach for the average pain ridden patient.

Understand this that, we the patients so riddled with chronic pain and illness daily are very likely unable to work. If we cannot work, finances are lessened and alternative treatments out of reach at present.  If the natural alternatives to pain killers were able to be bulk billed or at least have their payments part covered by the Government in some way, then people ill and in pain could have some other avenues to treatment besides painkiller medication or perhaps building a balance between their painkillers and the alternatives. Yes, there are overdose deaths related to pain killers, but there are also deaths related to chronic pain and illness and these may appear to be linked together. There isn’t always a way to tell whether someone died of an accidental overdose or if someone committed suicide by overdose because they were too overwhelmed by their illness and pain. I believe, there is a notion that we are more concerned about the overdose deaths caused from painkillers than the millions of people who are living in chronic pain and illness that maybe at risk of suicide. It seems that we are far more concerned for people after they are dead than when they are alive. If people are alive and in chronic pain and illness, it appears it’s not the medico’s problems until they die and then it looks bad.

Globally there is a chronic pain and illness problem, not an opioid problem. So let’s talk about how to deal with chronic pain and illness instead of just taking away medication that makes us look bad. 

So let me get to the actual addiction problem, and how we are handling it? We’re handling it by taking away pain killers from those that need them without considering that people might then turn to harder and illegal drugs to ease their pain or their addiction. Taking away pain pills from patients isn’t going to help anyone. The honest pain patients will live in agony and lose their quality of life, and the addicts will turn to the back street accessible harder ones. Let’s treat the actual problem because It’s not the people in chronic daily pain and long term health complexities who are the problem here. 

I don’t pretend that my little blog post can fully summarise the global problem of chronic pain, illness and the supposed “opioid epidemic” however it does draw out a simple understanding and this is why I am left feeling that only chronic pain patients like myself seem to understand the real scope of this problem and this is the reason for my blog topic. You see, I had to complete a survey for an upcoming pain management consult. The survey did nothing to really assist in building better and alternative bridges to overcome my chronic health and pain levels, instead just labelled me as a patient with a opioid addiction. Yes, I take numerous prescription and pharmacy bought painkiller medication but it’s because I have no other alternative. I have tried to live painkiller free, only to end in hospital frequently, being given hospital strength painkillers which contain opioids on a higher level.

The fact is that if there was more research, awareness and assistance for chronic pain and health patients we would not be alone in our fight for pain and illness management. I ask the politicians to stand up and help us the people in pain, I ask the doctors to please support and assist the rights of us as patients and I ask the media in all categories to please help and not scare the world in regards to this extremely important topic for the millions living with chronic pain and illness because at the moment we are a world that should be ashamed.

I hope that you are still reading my post at this point and hope that you may help me get my message out to the greater world by sharing this blog with your friends and family because it’s so much better to walk together than to tear each other down.

💋