Just How Do I Define Invisible Illness…….I Do It By #lightingtheflame πŸ”₯

So how do I define invisible illness; I could say it’s an illness or disability that is hidden or not apparent, but that doesn’t even begin to define what some of these illnesses really are, or how they impact the many millions that live with them everyday. You see, some people with sight or hearing disabilities may not wear glasses or hearing aids, BUT they are invisibly disabled.  Someone that may have to sit day in, day out because they have chronic back or joint problems sitting, can be categorised as having a invisible impairment. Invisible disability/ illness creates so many challenges for the people that live with them. There are so many more examples that I could give to define a invisible disability. The reality of invisible illness or disability, is that they can be so difficult for others to recognise or acknowledge. This makes it  difficult to understand the cause of the problem or problems, because they can’t see evidence of it in a visible way. So these invisible conditions have been captured under an umbrella term that captures the whole spectrum of hidden disabilities, known as ‘invisible illnesses’. Having so many illnesses and conditions under the one umbrella, means it is so hard to decipher and diagnose what is actually happening to a person that presents with unseen symptoms.


People with invisible illnesses can find it difficult to  make others understand how their  symptoms of such things as extreme fatigue, dizziness, pain, can be so debilitating.  This misunderstanding, will in many cases be met with hostility, judgement and stigma by the bigger community and world.

People living with invisible illnesses and chronic pain are often accused of faking or imagining their disabilities. These symptoms are real, they can occur due to bouts of chronic illness, chronic pain, injury, birth disorders, they can even just come out of the blue and most importantly are not always obvious to the onlooker.

 Many millions of people around the world, have a medical condition which could be considered a type of invisible illness or disability. Let me explain it this way, there are many that have a chronic medical condition of one kind or another, some of these people are not considered to be disabled, as their medical conditions do not impair their normal everyday activities. These people do not use an assistive device and most look and act healthy. So I’ve explained one side of illness invisibility, this is the other side, the side that causes and increases what can be debilitating physical or mental impairment that can lessen one or more major life activity.  

It saddens me that when somebody sees a person in a wheelchair, wearing a hearing aid, or carrying a white cane, it tells us a person is impaired in some way. But for people living with invisible illness and/or disability living is a bit more difficult for many people in the world to acknowledge. 

Invisible illness and disability can and do significantly impair normal activities of daily living.
Examples of Invisible illness Disability vary, here are just a few;

  • Chronic Pain can be the cause from a variety of conditions. A few reasons for chronic pain may be because of back problems, bone disease, physical injuries, and many more reasons. Chronic pain may not be clear to people who do not understand the specific medical condition.
  • Chronic Fatigue is a type of disability that refers to an individual who constantly feels tired. This can be extremely debilitating and affect every aspect of a persons every day life. It is totally invisible to the greater community.
  • Mental Illness is a term for many illnesses of the mind. Examples are depression, attention deficit disorder, schizophrenia, agoraphobia, bipolar and the list goes on. These illnesses can also be completely debilitating to the person suffering and can make performing everyday tasks extremely difficult, if not impossible.
  • Chronic Dizziness is often associated with problems of the inner ear, chronic dizziness can lead to impairment when walking, driving, working, sleeping, and other common tasks.

I hope you are beginning to see that being invisibly ill, effects many areas of health which effects many areas of life. Many people living with a hidden physical or mental challenge are still able to be active in their hobbies, work and even be active in sports, but their are others that struggle just to get through their day and cannot work at all. 

I want us all to be able to come together in understanding the true level of invisible illness and disability. Because, when we do we will truly begin to see awareness and support bringing better research and thus treatments. 

I will finish today with a list of invisible illnesses that I’ve been creating to show the world just how wide the umbrella is…….but even I may have forgotten some. If I have, please let me know and I will add your illness/disability to the list;

INVISIBLE ILLNESSES 

ADHD

Anxiety disorders

Allergies

Arachnoiditis

Asperger Syndrome

Asthma

Autism

Bipolar disorder

Brain injuries

Chronic fatigue syndrome

Chronic pain

Chromosome Duplication

Chromosome Triplication

Coeliac Disease

Conversion Disorder 

Crohn’s disease

Depression

Diabetes

Ehlers Danlos Syndrome

Endometreosis

Epilepsy

Fibromyalgia

Food allergies

Fructose malabsorption

Functional Neurological Disorder 

Hypoglycemia

Inflammatory bowel disease

Interstitial cystitis

Irritable Bowel Syndrome

Lactose Intolerance

Lupus

Lyme Disease

Major depression

Metabolic syndrome

Migraines

Multiple Sclerosis

Multiple Chemical Sensitivity

Myasthenia Gravis

Narcolepsy

Personality disorders

Primary immunodeficiency

Psychiatric disabilities

Reflex Sympathetic Dystrophy

Repetitive stress injuries

Rheumatoid arthritis

Sarcoidosis 

Schnitzler’s Syndrome

Schizophrenia

Scleroderma

Seizures 

Sjogren’s syndrome

Transverse Myelitis

Ulcerative Colitis

Invisible illness and/or disability creates challenges for the people who have them. I’ve said it before and I will say it again and again, the reality of these conditions can be difficult for others to recognise or acknowledge. You may not even understand the cause of the problems, because you cannot see evidence of it in a visible way. So, I say to you – YES, YOU out there in the big wide world, if you can’t see something, how can you judge it! Let’s begin walking together supporting those that are impacted by the many forms of invisible illness. Let’s raise awareness and bring about more real life research so better information and treatments can be formulated to change the way we all see and relate to invisible illness and disability.

If you’ve liked this post, please let me know and if we haven’t connected on social media, let’s do so here;

http://www.facebook.com/TheBarefootGoddessAU

http://www.twitter.com/just_1_goddess

http://www.instagram.com/the__barefoot__goddess

Much love to you all
TBG πŸ’‹

Tired, Weary, Broken & Fucked Up……..

So what happens when we fall……and we all do!

You know, those moments when we are tired, weary, broken & fucked up!!!!


These thoughts, feelings and actions occur when we live with invisible illness. These are the moments that make us need to keep fighting the pain of being chronically and invisibly ill. Illnesses such as anxiety, depression, autoimmune and neurological disorders fill us with scars that embed deeply into our mental, emotional and physical being. 

Beginning the process of healing and recovery from these debilitating illnesses takes work BUT throughout the process and progress, low energy succumbs and we fall……! We tire and perhaps stumble from all the work that it takes to recover AND it affects us…..and if this happens, we fall and we break!!!! 

When this happens, we feel that we have fucked everything up……all that progress-RUINED!

But these emotions that come and go when wandering a journey with invisible illness are real and we should not be ashamed of letting the world see them! We haven’t fucked up….it’s a stumble and yeah, if we fall, it’s just that a fall…..stand back up – be present and be YOU! Remember even mentally and physically strong people fall! This conversation that I am having tonight is such a strong anti-suicide message, for why fighting is so important to remember when we are overwhelmed with the chronic pain and suffering of these illnesses.

You are saying. . . but at these moments I’m too tired to keep fighting……Yeah, I get it, I’ve felt really tired too and YES I still tire after all my 15 years fighting……but I won’t give up, I don’t give up!

Invisible illnesses are diseases that can take a life time to recover from. They grind away at our inner most core, sucking the life out of us, just as we are rebuilding ourselves up from the ground. The fight becomes a moment to moment battle everyday and as we go, we have to listen to the self whispering, but more than that we have to stand up to our voices and the external voices who don’t recognise our illnesses as illnesses……it’s exhausting, and it’s why we get tired, weary and feel broken and fucked up!

These illnesses, these invisible fucking illnesses never take holidays so every day and every night you have to fight, fight and fight again. You might be finding the biggest reasons in the world to give up, but those reasons don’t need to be your reality. In fighting these illnesses, no one can see or know how hard you’re working to keep going every day. The fight is hard and in the walk to recovery you will feel broken.

BUT, WE NEED TO FIGHT……I know, you are saying, you don’t want too,  sometimes I have said that too, but you don’t get to stop. I’m sorry, but the statistics say life is better than death and I insist you go on living……I am and I do!

But the good news is that when you choose to fight, you choose to take your next breath. Our invisible illnesses want to steal us of everything that we want to and need to experience today, tomorrow and the days after that. But we are  not going to let these illnesses win. We are going to breathe in and out, one breath at a time, each and everyday knowing that this is our best fight and it’s enough, it will always be enough, because I am enough and you are enough!

Being tired is OK. Being weary is OK, feeling broken and yelling that we have fucked up is OK. But by taking the next breath…..after the yelling session, is all we need to do…..because that’s the process of the healing fight.
If you are resonating with my thoughts, feelings and conversations tonight please let me know, by liking and sharing this blog.

 I write about my experiences with wandering a journey with all the invisible illnesses that are part of me because when we share our stories we connect and help each other.

I am a advocate and speaker who has made it my mission to change the way healing and recovery is seen for all that live with invisible illness.

If you would like to connect further, please do so on my social media platforms;

http://www.facebook.com/TheBarefootGoddessAU

http://www.twitter.com/Just_1_Goddess

http://www.instagram.com/the__barefoot__goddess

If you are struggling……that’s ok but remember to find the breath…..breathe in and breathe out so the fight continues.

Much love 
TBG πŸ’‹

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A late night journal, sitting by the water meditating!

At the waters edge in this mornings meditation, has brought me such truth towards my vision, mission & purpose!

Let me tell you why and it’s all about going to bed with a profound journaling session ;

I HAVE A VISION, WITH A MISSION & PURPOSE TO LIVE…..
What is it, well it is simply to inspire and motivate the world that despite chronic health conditions, cancer and life’s roadblocks, have it all! I wander this life free to heal mentally, physically , emotionally and spiritually now that I can be me. 

Who is me – Well basically I am a ocean loving vegan, yogini, ballerina and abstract yarn artist who uses all of these modalities to transform my life and my life’s purpose to bring such a positive vibe and change to the people that I connect with globally.
I will never tell you out in the real world that I know everything, because I don’t know everything! But I do know, by continuing to wander the twisted bends of this world, the universe knows exactly the step that each of us needs to take.
I CAN STEP FORWARDS WITH MY VISION , MISSION & PURPOSE BECAUSE OF THE INTENSE VITALITY FOR LIVING & LOVING LIFE WITH ALL OF MY HEART!
I am the barefoot goddess, and together with you, I will walk, talk and shine in this big crazy world . 
AND so I slept mindfully and soundly and breathed my truth into this mornings breath session.

If you are struggling, take yourself to the waters edge, sit in silence and breathe through your truth and magic ,
Good Morning and blissful energy to you all today,
The Barefoot Goddess πŸ’‹
Please connect with me on social media at(

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess
“Wandering Towards Wellness, Globally”

I Am My Power, NOT My Chronic Illnesses….. Β  Β 

Living with multiple chronic illnesses is hard – NO, WAIT ITS ALMOST IMPOSSIBLE AT TIMES!!!!!
This week, if you’ve been following my journey, you would of seen it’s been immensely difficult. Getting to the end of this week and knowing I didn’t want to spiral any further down the gurgling dark hole again – I knew that I needed to shift the energy caused by my chronic health battle. I needed to make things happen, rather than just evolving by letting them happen repeatedly. I’ve come to learn that I am more than these illnesses that crush my existence, so that’s just what I did. I realised, I could own my power.

What do I mean, that I could own my power? Well for me, the new inner power came because I allowed thoughts of being supported by myself, for myself. Finding my own power has allowed me to release and truly let the magic replace the irritating experiences of darkness. I’m not saying, that I’ve removed the chronic pain and illness flares that build up inside my body, no not at all- but what I’ve found is by giving myself back the power- I can be in charge of what happens, in these times and not my health complexities.

  • These last two days, having this newly understood power feels wonderful and I want to be able to have these feelings stay with me, as I wander towards wellness and a life that is loved. So, let me give you my thoughts on how I’ve found my power and how I will keep it shining through in each day.
  • For way to long, I’ve had to wander around and around within my chronic illnesses, at times feeling like I am a tangled ball of yarn. My illnesses have controlled everything past, present and everything in between, leaving me unable to breathe my positive thoughts on life as I wanted it to be. Through these thoughts, negative consciousness connects and all of a sudden life becomes dark. These thoughts and the situations become reoccurring patterns of behaviour and soon enough the power is lost. Thinking about this as the last week kept disappearing into the darkened mist, I knew that I didn’t want to become tangled up inside my illnesses anymore. What I’ve found is that I’ve had this power all the time and it’s just about unleashing it when times get tough and it all revolves around changing my thoughts and releasing the pain to allow space for fresh breath and the magic of new experiences and opportunities to connect in me.
  • Living with these illnesses like I do, causes me to withdraw into myself. I can tell you, when I let myself withdraw further and further within, my head begins to play crazy tricks on every level of my life. So, the power begins by focusing on the positive and healthy path that I wander. At times of chronic flares and when it all looks like disaster, I need to find a way to clear some of the messy clutter from my head, allowing my brain much needed space to regather, recharge and renew the journey of life for me to wander.
  • The messy clutter occurs because of the negative thoughts and experiences that chronic illness causes to every aspect of life. There are instances within my journey of health challenges and lifestyle battles that I know cause me to breakdown. Once, I breakdown, so do the illnesses that lay inside me. I know now, to stay in my own power I need to remove that negative clutter that reoccurs far to often. I need to allow myself space within myself so that when I need to stop and rest I can do just that. This will allow myself to journey forward with the positive vibration that I absolutely love to feel.

It is amazing what I’ve learnt in just two days about being in my own power. It has actually allowed me to believe in myself more, than ever before. This has all happened because of the power of journaling and sharing my experiences through this blog. You see, as I was journaling my thoughts and feelings, prior to translating it into that last blog I was finding myself more open to the idea that i can have, be AND do whatever it is that want, despite the nastiness of the illnesses that I live with. By journaling my thoughts, feelings and emotions outwardly I create so much more space, to concentrate on the positive mindset and visual purpose of life. Journaling and blogging has given me the independence and the confidence to talk outwardly about my pain, my sadness, allowing me to release and let go of all the unwanted mess that would otherwise remain locked inside of me. Having this power now on the outside, I can concentrate on controlling the innermost movements using mindfulness with my beloved yoga and meditation that somehow got lost in the journey with darkness. I’m back in a place where I can visualise life being as I want it, not as it feels in my body during the chronic pain experiences. Now is the time to take my power to the new levels helping others that maybe feeling the same. I’m going to write and write and when I need to stop and rest I will write some more because it’s going to allow me to breathe in the bliss that’s required to owning our own dreams and lives. When I can do that, it is possible to dissolve the challenges that chronic illness brings and let’s the magic of new opportunities and experiences to arrive at the door. I have the power and I will be now learning the process so that I can remain standing in this newly understood power. I know that, circumstances will come through and throw curve balls but by journaling and translating them into blogs and verbal conversations I will guarantee that I give myself the best chance of being the power of me.

Have you found your power, if so I would love to hear how you found your way into that space. I would also love to hear from you, if you continue to struggle with being in charge of your journey. Make sure you connect here or through one of my social media channels.

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess

Lisa-Raie 

(AKA the Barefoot FND Goddess) πŸ’‹
“Wandering Towards Wellness, Globally”