The Day Begins With Breakfast.

Living with chronic invisible and debilitating illnesses leave me drained, lethargic and so exhausted! There have been many days over weeks, months and years that I’ve awoken and have not been able to begin with breakfast. I have learnt through experience and study, that skipping this first meal of the day is harmful for health. There is a reason that, it’s called ‘breakfast’, because it’s the time where we all need to break the fast that has been from the previous night. Through my healing journey with Functional Neurological Disorder and other debilitating chronic illnesses, I want to help others be aware of the importance of looking after ourselves so much better.

It has been proven through research that the skipping breakfast causes many of the major illnesses that we all know about – these include; obesity, high blood pressure, high cholesterol, and diabetes and many others. But did you know that skipping breakfast can cause harm to our internal organs and muscles if we are not energising our cells and hormones. This can cause many other illnesses that many know very little about. Learning to eat a healthy morning breakfast benefits us with balancing energy levels for memory, body and brain.

Morning breakfast is one way that we can restore our health and rebuild a life that has been debilitating destroyed from chronic illness. If we don’t eat breakfast, then by the time the middle of the day comes and we haven’t correctly fed ourselves , our internal system is becoming imbalanced and this can cause such a negative impact on brain and body the more we wander a path using wrong nutrition steps. I know, because this was me. It left me with a distressed digestive system and body furthering the impact with worsening health. 

So my journey to wandering towards wellness has had to change, so that I can begin to live a life that I love. Let me tell you, there are mornings that eating is the furthest thing from my mind, if I haven’t slept well or if pain is at high levels. But, I am reeducating myself to know that a morning breakfast routine can not go missing on any day. A good start tothe  morning, may begin with different groups of foods, these may include hints like;

  • Toast 
  • Porridge 
  • Eggs
  • Yogurt 
  • Fruits 
  • Juices or Juice smoothies 
  • Coffee/Tea
  • Warm lemon and coconut oil water

Perhaps, if you need to be up earlier in the morning for an appointment and instead of skipping your breakfast you could plan foods or drinks that you can take with you. These may include;

  • Juices/Juice smoothies 
  • Chia puddings
  • Yoghurt & fruit 

What is important that you find a nutritional content that works for you and your body. For me personally, I now will be starting each day with a freshly made juice or juice smoothie and what makes it easy, is that after I have shopped I will food prepare all of my weekly juices in freezer bags, so that no matter how I feel I only need to go to the freezer and get my portion out and blitz it in my juicer or blender. Breakfast is made in a instant and most days I’ve given my body so many nutrients in order to heal and regain energy and health.

Don’t keep skipping breakfast which is bad for health. Start a new routine that will give you a reenergised energy for each and every day and I will certainly drink to that.
Much love 

Lisa-Raie

AKA (The barefooted FND goddess) 💋

Please connect with me here or across on my social media channels;

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess

Snapchat 👻 @simply_lisaraie 👻
“Wandering Towards Wellness Globally”

Choosing Me, Chooses Health & Life….❤️

Today, I felt compelled to fully commit to the world that I have gone without the feelings of being sassy and soulful for so long. BUT, I can tell you that falling down hard at the beginning of this year was the catalyst of me taking true authentic and very vulnerable action towards truly healing and becoming me and oh gosh I am again believing in myself and beginning to breathe so much sass and soul for my health and my life. I am now free to empower wisdom on why choosing ME allows true healing and a life to love. ❤️ 


I hope, that if you are seeing and hearing this message today you may be inspired and empowered to take action on yourself  finding a life to love.

Connect here or on one of my social media channels;

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess

Snapchat me 👻@simply_lisaraie 👻

“Wandering Towards Wellness”

Breathing Through Chronic Illness With Meditation 🙏🏻

If you are like me, I don’t have to tell you that living with chronic illness can be at times unbearable. I know I do everything I can to get through days and nights – I try moving but that hurts, I rest but that hurts, so I do nothing but that hurts more! So by the end of each day, I’ve taken the maximum dose of painkillers that I could but the ache is overwhelming and consuming every breath. It’s a vicious circle that rotates endlessly.
But, as I’m having to deal with the chronic pain and endless number of physical symptoms that hurt – it’s also my mind that is also hurting . Questions, questions, many questions consistently overload my brain with such things of being unable to deal and cope with the ongoing pain and illness and all I’m asking is that I just want it to stop – I JUST WANT IT TO ALL GO AWAY – but it doesn’t!
This has been my constant thoughts and feelings over many years but I find of recent weeks it’s back with a vengeance! Pain insomnia wreaks havoc on living, so the only thing that I can do is to fight back against these moments of excessive chronic pain and illness so that I don’t fall back into a spiralling doom of despair.
Last night, I switched off from social media and connected back into a mindful space with meditation. A number of years ago, I found yoga and meditation and I found that it reduced my chronic pain and illness immensely and I was able to learn the principles and I began actually teaching it. However, as I stepped up the energy levels, my chronic illnesses stopped me in my tracks again. I could no longer do or teach yoga because of paralysis and weakness and so meditation fell by the wayside too. Being in a zone with insomnia for over a fortnight, has lead me to think about ways of not falling backwards-the breath of mindfulness has come back. I know very well that this mindful action soothes my mental and physical angst. I have no idea if I can bring myself back to being able to no longer feel pain with the intensity that I am, but if I bring back my focus to the breath just possibly I can help untangle the thick fog that insomnia lands me in.

So back to meditation i go. What meditation does is focus on different parts of my body simply using my breath.  It allows me to see my mind and body in action and to feel the pain sensations as they rise within my body and then let go of them using calming deep breaths. I did not think I would have success straight away, but I was amazed by the difference. Last night, has been my best night for about a fortnight. You see, just by bringing my calming breath back into play my chronic pain insomnia and intolerable nerve pain and twitches began to melt and I was able to rest and was able to sleep – YES SLEEP.

I know my pain arises from my multiple chronic illnesses and the damage to my bodies nervous system and what is like a speaker in my brain leading the intensity of mind and body suffering. From studying different forms of mindfulness and from my personal health experiences, I’ve learnt that my mind does not simply feel pain, it also processes all the information that it holds. Its like my mind, zooms in on my pain looking for away to take it away but instead what my mind is doing is causing my pain and or hurting to be louder. Before long I’m in periods of excessive pain and illness and insomnia is causing me more hurting. I know, if I don’t do something I will end up being consumed again by my excessive anxieties, stresses and worries as well as my physical pain.  As I spoke earlier about in an instant the vicious circle of downward spiralling is with me again, which hurts and  impairs my healing process and leads to even more hurting.

So it is time to again, step into handling my pain and hurting differently to how I currently am. I need to lay my hands open to the powerful effect of mindfulness so that I can better control my pain. I know personally when focused, that mindfulness does turn my volume control down on pain. It also lessens my anxiety, stress and the depression that it has brought me. Using mindfulness, my mind and body can again truly relax and perhaps in conjunction with my medication and other problems which include my memory loss may improve as well as my mental and physical energy. As I’m writing this I’m wondering – WHY THE HELL, DID I GIVE UP MY MEDITATION!

So come forward – I’ve found a wonderful app called “InsightTimer” – you may want to have a look at http://www.insighttimer.com . This app, has over 2000 different meditations- I regularly search the different rest, relaxation and sleep meditations and I’ve again found that stepping into following the guided sessions I can use mindful activity as a powerful painkiller in conjunction with my other medications to assist my steps walking forward.
If you would like to give meditation a go, I would suggest looking for the app I spoke of but also practising getting your mind and body to relax. This is an activity I use and its best practiced in a quiet area. Don’t worry if your mind wanders. Mine does, so don’t get mad with yourself. When it happens, just bring the awareness back to your breath and concentrate on the part of the body  where your mind wandered. As you focus on each part of the body, listen to how your body is feeling.

So let’s begin the practise;

I will generally Lie on the floor, my bed or my sofa, letting my legs lay relaxed and slightly apart. I place my hands on my tummy (presently I have a paralysed right arm so I place that hand under my left, so it stays in place. I will close my eyes and sink myself into the floor. Next I focus on my breath – listening and feeling as it flows in and out of my body. I will just lay still noticing how my breath is, feeling the rhythm of each breath in and out with as much detail as i can – doing this allows me to really connect inward. I will start at my toes and work up – spending a few minutes with each area of my body feeling how it feels in temperature and with pain. As you breathe in, hold your breath and then slowly exhale in each breath, I use the count of 4 and then again to the count of 4, I exhale. I will often spend more time on particular areas of my body that are feeling worse pain. Once I’ve listened I will move my awareness to the next area of my body. I will stop and observe what i find for a minute. So basically it’s about breathing deeply in, holding your breath and then exhaling observing from your toes up all the way to the top of my head. Once I’ve reached my head I will spend a couple of minutes observing my whole body breathing as one. Slowly I will open my eyes and bring myself back to my surroundings. What I find, is that there is a calmness across my body, I may still have pain but my body is in a state of awareness that allows me to either continue with my day or settle into a restful space for night.

I hope that this post has been of help for you, if you’ve been thinking of trying to incorporate mindfulness and meditation into your life and chronic illness journey. If it resonates with you or perhaps you want to know more about my journey, please don’t hesitate to connect with me here or across on my social media channels.

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess

Much love

LR – The Barefoot Goddess 💋

 

My Walk With Invisible Illness…..

We are in the middle of Invisible Illness Awareness Week, so i’ve been thinking of a way to talk about what it actually is and how it affects me.

So to define invisible illness;

Invisible illnesses are chronic illnesses and conditions that significantly impair normal activities of daily living. 

The definition, tells us what it does but their are so many different spectrums of invisible illness, that everyone’s experience is different. My journey with invisible illness involves a complex list of illnesses, which include; fibromyalgia, mixed connective tissue disease including lupus SLE and Wegeners Granulomatosis, Ulcerative Colitis, anxiety, depression and functional neurological disorder. Each one of my illnesses joined together mix a chronic cocktail to significantly impair my life walk.

So, I’ve defined invisible illness and what it is to me, now what does a average day look like. This, is difficult to describe because everyday can be so very different to everyone that lives with these most chronic and varied conditions. So let me tell you a little bit about of how invisible illness can affect me, on any given day. My invisible illnesses leave me feeling so exhausted, that I feel like I am clinging to the edge of life but because nobody can see what and how I’m feeling, many times people judge me and tell me that what I’m feeling is not real, other times that I’m just a failure and many times,” oh Lisa Raie you are looking so well” but seriously I may be having one really bad day. Having people say these type of things, makes living with such chronic and complex invisible illnesses oh so, very lonely as I get so tired of having to prove my illnesses. I have infact lost many people along my journey. For the ones that I still call family, friends and colleagues they know that plans may need to be changed or postponed when pain and illness cause immense problems.  


Every day  I do the best I can, if I need to sleep, I now sleep, if I need to change booked commitments, I will change or cancel and if I’m told that I’ve let someone down – I just have to deal with it. It is hard to take when people get angry or upset, but I know that as much as I try and make them understand they can’t – why because unless you live with these chronically hidden illnesses, you can never feel what I am feeling. Many times, I’ve felt like saying – ” I wish you could feel what I feel ” but seriously I would never want anyone to feel what I live with.


Living with such invisible illnesses has taught me to be strong at times when I thought that my time maybe up. I’ve learnt what never giving up really means and it’s why I’m now wandering the globe talking and sharing my experiences so that those uneducated and ignorant to invisible illness become aware. When we can all walk together, it is my hope that further help, assistance and change can be given to all the invisible illness warriors and goddesses.
If you’ve resonated with my words, please connect with me over on my social media channels because we all walk as one and it would be great to walk as one together rather than tearing each other apart.

💋

http://www.facebook.com/iamfndaware

http://www.twitter.com/FND_Goddess

http://www.instagram.com:fnd_goddess

SnapChat – simply_lisaraie

You Don’t Need To Be Perfect To Make A Difference 🙏🏻

Sitting here writing for myself and for this world that I live in I realise that, I’m not a perfect person, I make a lot of mistakes but still, I love those people who stay with me after knowing how I really am. And this my friends is why despite my limitations and challenges, I will succeed in making such a difference to the way this world treats and sees #chronicillness. Because I am a barefoot goddess and a survivor.

This is life and it’s about walking together NOT about tearing each other apart. 💋

Asking For Help……

Asking for help, is the hardest thing when you are chronically ill……WHY???

Simply, because when we ask for help, it’s acknowledging that we can’t do things for ourselves anymore. Admitting that I required assistance for particular housekeeping chores was such a big thing for me – but I accepted it but I held back from accepting the personal care help, because by accepting that help was me becoming worthless. By knowing that I can not safely go into the bathroom and shower myself is heart wrenching. I’ve had to really search deep within myself to allow personal care to be ok and do you know, I think I am now comfortable with it because I know my safety is paramount with me being able to being able to still live and love the life that I am in.

So what is this home & personal care that I talk of?

Home & Personal care is provided by home care workers who visit people that are somehow incapacitated by illness or disability in their own homes and help them to live as independently as possible.
It’s about maintaining a person’s quality of life in their home – keeping them safe and comfortable, attending to their physical needs and supporting them with their daily activities of living. It’s also important for their social and emotional needs so that they can still enjoy life. As I mentioned earlier, these services help those ill or disabled or it might be for people getting older, who are chronically ill, or perhaps recovering from surgery or disability.

There are many reasons and times in life when someone might need help with daily activities, perhaps a family carer needs to get out of the house and a care worker can come in an provide a few hours of respite care, an adult child may have relocated house to another city or town and can’t help their elderly parent with tasks around the house anymore, a degenerative illness or disease may affect a persons ability to complete activities of daily living like meal preparation and daily grooming.

When the care worker comes to the home, they may need to help with the cleaning of certain areas of the home, making beds, mopping and/or vacuuming of floors. Personal care workers maybe called on to give assistance with showering, bathing, toileting, getting dressed, shaving, helping the particular person in moving around, or perhaps getting in or/and out of the bed and of perhaps medication reminders.

After having my home care workers now for a number of months I am so very grateful and I now look forward to my personal care workers coming to help me wash my hair and generally freshen up. 

Life is about now and I can’t push things away just because it may be icky or intrusive – if these workers can help us still live it’s worth taking a chance and that’s what life is all about. 

Carers help life continue for the chronic illness goddess/warrior and I for one stand in honouring them for all the work they do for us the chronically ill and disabled.

❤️