So You Have A Diagnosis of FND……WHAT’S NEXT ?

So you’ve got a diagnosis of Functional Neurological Disorder! GREAT – but how quickly, that elation diminishes- well it did for me! I soon had many more questions than when my array of symptoms was initially being worked out.

So there I was, I had a diagnosis, that even my initial neurologist didn’t know much about. She sent me home with the name of a website, medications and lots of referrals. I was paralysed down my right side, unable to use my right hand, loss of balance finding it dreadfully hard to walk even small areas without falling, that was just the tip of the iceberg of what was happening to me! I was totally needing the assistance of my husband…..BUT, I had to wait weeks for my referrals to let the only known treatments begin…..and those weeks seemed to last a lifetime! The treatments did finally begin and yes, I have progressed well but I am still left with bouts of debilitating symptoms that would floor even the strongest of people.

Sorry to ramble, but this is a similar journey for so many people also affected with FND. It’s very frustrating, scary and lonely but finding a GP and neurologist that you can trust, so that you can keep an ongoing relationship with over time is so very important.

This is why, I’ve decided to go public….very public on my healing journey with FND. Everyday, I am involved in my treatments that include NeuroPhysio, OT, speech and psychological therapies. If that’s not enough to concentrate on, I am also beginning to create and launch what will be a globally known research foundation with a connected healing centre. I want to bring thorough research for more reliable ways, firstly for making the FND diagnosis. But I want to then, have a better platform for educating neurologists and general practitioners around the world about how to educate and connect appropriate treatments to suit individual patients. With a better platform for medical doctors, I feel that a much better awareness and support system will be able to be put into play for patients and their carers. There are a number of patient support groups popping up across social media now and I believe these are wonderful links to help people connect with others that are living with similar but different issues with the same disorder. 

However, for me to be able to do this I need a bigger support network. Across, the globe there have been sports stars and celebrities, who have succumbed to debilitating diseases. They have helped awareness and research foundations for their particular medical conditions, set up amazing platforms. I don’t have that profile….but I do have the determination because I am a survivor of this condition and with your help out there, I know we can build people power in bringing what so many that battle FND need for healing health and life.

If you haven’t connected on social media, please do so and let’s beat this beast of a disorder;

http://www.twitter.com/just_1_goddess

http://www.instagram.com/the__barefoot__goddess

Walking & Talking for ME and YOU,

Harmoni 💋

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The Day Begins With Breakfast.

Living with chronic invisible and debilitating illnesses leave me drained, lethargic and so exhausted! There have been many days over weeks, months and years that I’ve awoken and have not been able to begin with breakfast. I have learnt through experience and study, that skipping this first meal of the day is harmful for health. There is a reason that, it’s called ‘breakfast’, because it’s the time where we all need to break the fast that has been from the previous night. Through my healing journey with Functional Neurological Disorder and other debilitating chronic illnesses, I want to help others be aware of the importance of looking after ourselves so much better.

It has been proven through research that the skipping breakfast causes many of the major illnesses that we all know about – these include; obesity, high blood pressure, high cholesterol, and diabetes and many others. But did you know that skipping breakfast can cause harm to our internal organs and muscles if we are not energising our cells and hormones. This can cause many other illnesses that many know very little about. Learning to eat a healthy morning breakfast benefits us with balancing energy levels for memory, body and brain.

Morning breakfast is one way that we can restore our health and rebuild a life that has been debilitating destroyed from chronic illness. If we don’t eat breakfast, then by the time the middle of the day comes and we haven’t correctly fed ourselves , our internal system is becoming imbalanced and this can cause such a negative impact on brain and body the more we wander a path using wrong nutrition steps. I know, because this was me. It left me with a distressed digestive system and body furthering the impact with worsening health. 

So my journey to wandering towards wellness has had to change, so that I can begin to live a life that I love. Let me tell you, there are mornings that eating is the furthest thing from my mind, if I haven’t slept well or if pain is at high levels. But, I am reeducating myself to know that a morning breakfast routine can not go missing on any day. A good start tothe  morning, may begin with different groups of foods, these may include hints like;

  • Toast 
  • Porridge 
  • Eggs
  • Yogurt 
  • Fruits 
  • Juices or Juice smoothies 
  • Coffee/Tea
  • Warm lemon and coconut oil water

Perhaps, if you need to be up earlier in the morning for an appointment and instead of skipping your breakfast you could plan foods or drinks that you can take with you. These may include;

  • Juices/Juice smoothies 
  • Chia puddings
  • Yoghurt & fruit 

What is important that you find a nutritional content that works for you and your body. For me personally, I now will be starting each day with a freshly made juice or juice smoothie and what makes it easy, is that after I have shopped I will food prepare all of my weekly juices in freezer bags, so that no matter how I feel I only need to go to the freezer and get my portion out and blitz it in my juicer or blender. Breakfast is made in a instant and most days I’ve given my body so many nutrients in order to heal and regain energy and health.

Don’t keep skipping breakfast which is bad for health. Start a new routine that will give you a reenergised energy for each and every day and I will certainly drink to that.
Much love 

Lisa-Raie

AKA (The barefooted FND goddess) 💋

Please connect with me here or across on my social media channels;

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess

Snapchat 👻 @simply_lisaraie 👻
“Wandering Towards Wellness Globally”

Choosing Me, Chooses Health & Life….❤️

Today, I felt compelled to fully commit to the world that I have gone without the feelings of being sassy and soulful for so long. BUT, I can tell you that falling down hard at the beginning of this year was the catalyst of me taking true authentic and very vulnerable action towards truly healing and becoming me and oh gosh I am again believing in myself and beginning to breathe so much sass and soul for my health and my life. I am now free to empower wisdom on why choosing ME allows true healing and a life to love. ❤️ 


I hope, that if you are seeing and hearing this message today you may be inspired and empowered to take action on yourself  finding a life to love.

Connect here or on one of my social media channels;

http://www.facebook.com/IAmFNDAware

http://www.twitter.com/FND_Goddess

http://www.instagram.com/fnd_goddess

Snapchat me 👻@simply_lisaraie 👻

“Wandering Towards Wellness”